Dale's been telling me I should post something ~ you know, "my first post" ~ after surgery. I've been avoiding it because I haven't had anything positive to say. Pretty much everything on my mind is negative and I'm having a really hard time seeing the good side. Today I'm trying to feel good and rather than sitting here watching TV, I thought I would give it a shot. So here I am and this is my list of good and bad.
GOOD:
1. Dale. He is everything to me and all these years later, I still don't understand why he's picked me ~ but I am grateful everyday. He is kind and smart and beautiful (not pretty) in every way. I can only hope to one day be even half as good as him.
2. My tumor was not cancer.
3. I survived surgery.
BAD:
1. Walking is hard. I can walk by myself now but I have to give it complete focus and it's annoying.
2. I can't hear out of my right ear or I should say, the only the only thing I hear is really loud buzzing (static, humming...not really sure how to describe it). After I'm in a room with lots of noise, it's even louder and oh......it's annoying.
3. My hearing in my left ear is good in fact, it seems like everything is even louder. Things get to be too much. There are no soft sounds anymore.....it's annoying.
4. I am hungry for protein constantly. If I wait too long, I feel sick. It's annoying.
5. When I go from standing to sitting or sitting to standing I get a major head rush. It also happens if I try to bend down. I've learned to pick things up with my toes so I don't have to bend down as much. Stupid ~ but true. It's annoying.
6. I hear my heart beat in my left ear. I can usually ignore it except when I exert myself it gets very loud. It's annoying.
7. Looking to the left is hard to do and it does not feel good. I think it's because of the muscles they cut on my right side.....too tight!! It makes me a little dizzy and it's annoying.
8. Sleeping stinks! I'm a stomach sleeper and it's not comfortable right now. If I sleep on my right side, it feels really weird because my incision is still very sensitive and my head is still kind of numb. If I sleep on my left side, I can't hear (good ear). If I sleep on my back, I wake up with a really uncomfortable stiff head/neck. It's annoying.
9. My head feels like I have a bag of sand in it. Very heavy and awkward. Can't really explain it but it's kind of disorienting. My head hurts when I walk too hard or if it's jolted at all or if it shakes or if I'm on a bumpy road. It's annoying.
10. I'm tired a lot. Very annoying.
11. My face hurts when I open my mouth (not funny) ~ my lower jaw hurts. Not sure if it's muscles or sinus'. It's annoying.
12. I'm sad. I know that sounds like a stupid thing to say but it's new and not pleasant. I'm sad and I cry and I just don't see the light at the end of the tunnel. I know ~ I get it. Two steps forward and one step back. Blah, blah. I'm sick of hearing it.
I really don't think of myself as a person that over exaggerates pain or discomfort. I have a pretty high tolerance for those things but this is so much more than I was prepared for. I find it interesting that in all of the paperwork and discussion of the surgery that the only information about what to expect after surgery is one small single sided list that tells you not to blow your nose and to keep your head elevated and to call them if you have a clear discharge from your nose. Okay...still not sure the difference between a runny nose and clear discharge! When I see the doctor and ask about my list I get no real answers...."could be a few weeks ~ could be a few months". Hello??? Not comforting. I work much better in black & white. Not real good with the grey area and I would think that they could come up with some sort of average?? I guess I'm asking for too much! I'm supposed to go back to work in a couple weeks and I just don't see how on earth I'm supposed to do that! Sitting at a desk ~ in clothes ~ bathed ~ in a big room ~ with bright lights ~ and noise ~ for 8 hours! I know it's important to be positive and I know it's still a couple weeks away and maybe things will change ~ but it makes me sick to think about it. I love my job ~ my coworkers are great and my employer is great but this just seems hopeless to me right now. Heck, it will take me forever just getting from the parking lot to my desk. Do I bring a chair and take a break half way to my desk? Lovely! What about my house? I have painting to do and wallpaper to strip and flowers to plant. Hmm....real easy to do without bending down! Last weekend Dale took me to the grocery store. I felt totally disconnected from it. All these people swirling around me ~ loud and fast and bright. It was very disorienting. Supposed to try it again tonight. Yuck.
So, I guess my first post ended up being a rant and if you've actually read it and gotten this far ~ thanks for listening. I will try to come up with something a little more positive next time.
Hey Kathy, you know what? You are right! It sucks (I don't use that word very often but it fits perfectly here) recovering from brain surgery. Sometimes I still feel bad b/c people on the Forum seem to have a great recovery with NO problems...I didn't. I know it is hard not having black and white but every case is so different...and that answer sucks too! I was reading yesterday where a guy got out of the hospital from ICU - the day AFTER his surgery!! I certainly couldn't have done that (NO one could believe it - that is pretty radical. However, they didn't have any beds so he talked the Dr. into letting him go home since his wife was a nurse)! Believe it or not, your "goods" will outnumber your "bads" - I look forward to that day for you...just know it could take a while. It is OK to feel the way you do...for now! I'd be more than happy to chat with you on the phone if you want to send me your number - let me know if you want my e-mail address. Oh yeah, use a rolly office chair to get around if you need to - that's what I did!
ReplyDeleteKay~
ReplyDeleteThank you. You were a super help to Dale and now I see why. It's wonderful knowing that there is someone out there who understands. I will re-read your reply when I have another lousy day. Thank you ~ really!!
~Kathy
Kathy,
ReplyDeletePlease know that we miss you at work and we're rooting for you. There'll be a big bowl of chocolates or steak bites (your choice)on your desk when you return... in due time.
We think of you often.
Larry
Kathy~
ReplyDeleteIf you want to e-mail me, here's the address: threecurlygirlies@sbcglobal.net
Larry~ It's so nice from you. Sorry about the crabby/crappy post. I guess Dale is the writer in the family! I miss you all very much and I look forward to seeing everyone. ~Kathy
ReplyDeleteKay~ Thank you for sending along your email address. I just might take you up on your offer. It's a huge relief having it...just in case. ~Kathy
Kathy's sister here-
ReplyDeleteKay-Thanks for your encouraging words. I get a mix of worried and anger when her Drs. don't seem to provide any answers or relief! Since you have been through it your advice is probably better! Reading your posts must help ease some of Kathy's anxiety -they certainly do mine! :)
Larry-Don't know what position you are at Kathy's work but your post was kind and I'm sure made Kathy a little bit less anxious about being away from work! :)P.S. I'll take the chocolate if she keeps up with her new found love of beef!! hee hee
Kathy-It's ok to bitch and moan with what you have been through! You have been very brave and strong! You are doing much better than I ever would have( And you know that for sure)!! You would tell me that if I wasn't totally recovered and ready for work at exactly 8 weeks than I would just have to be patience and keep working at my recovering!! So that is what I am telling you (isn't that great big sisterly advice)! :) Of course than I'd bitch and whine so see, you are on the right track!! :) xoxoxoxoxoxoxoxoxo See you soon xoxoxoxoxoxox
Kathy - It was great hearing from Dale on your progress... but even better hearing from you. Appreciate the effort it must have taken and your honesty. I would think that if anyone has a right to be a little crabby you've earned it. Just hang in there and don't be too harsh on yourself.
ReplyDeleteLarry
Also, don't worry about your new found love beef. Once you're back, we'll order an extra "Meat Lovers" pizza from Jets and you'll fit right in with the rest of us guys. I'm sure John and Christo will gladly eat your veggie slices.
Hi Kathy,
ReplyDeleteIt is so refreshing :) to hear your rants...I am so glad that the spitfire Kathy that I have come to love is not gone. Go ahead and complain all you can, heck, you've been through so much. But truly, you might not see the silver lining (yet) but you will. I miss you so much! Hang in there!!!
Nelia
Kathy,
ReplyDeleteYou have been through a lot...you made it!!! I believe that the worst part of it is behind you. You will see the light at the end of the tunnel...I am sure of it. I pray for your healing every night.
Love,
Leslie
Kathy,
ReplyDeleteI was good to hear from you, Kathy! Dale's posts have been so appreciated, but hearing from you was wonderful! You've come so far and you've fought such a big battle, and you ARE getting better! Slowly but SURELY! Keep up the good work! Thinking of you and praying for you daily! Peggy V.