Kathy did real well with breakfast and some PT this AM.
Second try for PT went well at first, (made it to restroom & back plus some standing & bedside sitting), However, Kathy ended up in so much pain we had to upgrade the pain meds to Dilaudid (like heroin ), so that shot the rest of today's therapy plans AND lunch, since it knocked her out for almost four hours.
Right now Kathy's up (in bed) & nibbling at dinner (veggie burger, mashed potatoes, sliced peaches, vanilla Ensure, ice cream and Vernor's. We are hoping for maybe 10 -15 bites. & some Ensure.
We managed one more trip to the restroom & then the request for the anti barf meds came. We have three available but can only have one type at a time and must space them, trouble is we never know which one will work when.
Today I received training on all the exercises Kathy will have to do now & when she gets home (I actually practiced each one myself). Some of these are tough even if you don't have vestibular issues!
So today we are another day behind schedule now hoping for home next Monday & still weeks of work to do.
Today my name is Dale again , however Kathy said to Mom & I "I love you both but would really like to kick you!" Of course my retort "Too bad you will not manage to do that until you get better AND you have to do your therapy before that will happen" was not received too well.
A word about courage...
We have all heard what courage 'means'. Grace under fire, not the absence of fear but the mastery of fear.....
I personally have spoken one on one with WWI vets that were gassed & went back to the front, WWII vets that survived the Normandy invasion & hand to hand combat, more than a few Holocaust survivors & Vietnam vets that told of unimaginable scenes of carnage and pain yet kept fighting.
So why do I bring this up?
Because I'm sitting here in this hospital on the neuro wing surrounded by 'common people' that are some of the most courageous people I have ever seen or met.
People like my wife who know if they simply open their eyes or move their head they are going to experience overwhelming pain & nausea but know they must to get better even though days of this suffering lie ahead.
People that have both eyes bandaged and are in pain yet have no idea if they will ever see again and refuse to give up hope and say I will find a way even if.....
Family members that have the courage to come every day to cheer, prod, encourage and love .
And the nurses, aides, techs, doctors and all the support personnel that come each day to help, heal & comfort even though some days they are surrounded by such pain and misery.
And yet do we ever read about this? All this courage every day, in countless hospitals around the world?
You don't have to be religious or believe in G-d to count your blessings my friends.
Thanks to all the ladies in HR @ Ikea, Thomas in Austria, Kay (you are an inspiration), Larry & all at the Heritage Center, Rich D, my very dear friend Renee, AND Bobby Jo, Kathy's dear friend in Kentucky (you make her smile).
dale
Awww...I was hoping things were getting better. I hope today(Wed) is better for you. How are those itty bitty goals coming?? It does stink, I know...but also know that there is light at the end of the tunnel! Out of curiousity, how big was the tumor & what surgical approach did they use? Continued healing...K
ReplyDeleteKathy and Dale:
ReplyDeleteThis is the first time I've ever logged onto someone's blog and I want to thank you for chronicaling this experience. I feel like I am walking along with you both on this journey, even though I'm 300 miles away in Chicago. Love you both.
Auntie Dawn
Hi Kay:
ReplyDeleteInitially we thought the tumor was 2 cm but were told post op 'it was larger then expected' but to be honest we were so happy it was out & benign that we have not asked the actual size. I believe the retrosigmoid approach was used, it's behind the hairline & they did use 'skull putty' to reconstruct the point of entry (we hope).
So far today we have made good progress!
Thanks for all you encouragement!
dale
A note to Auntie Dawn:
ReplyDeleteDale's typing (so you have no idea how long it's taking), just wanted to say thank you for checking in on me, and really wish you still lived in Garden City-BECAUSE YOUR HUGS ALWAYS MAKE ME FEEL BETTER!
XOXO Kathy